Active & Healthy Ageing

Co-Designing an Integrated Model of Palliative and Dementia Care

pending
START May, 2023
END November, 2023
FUNDER Hunter Medical Research Institute’s 2023 Healthcare Transformation Research Program
VALUE $15,000
PROJECT TEAM Professor Nick Goodwin, Dr Zoi Triandafilidis, Cate Dingelstad, Professor Mariko Carey, Dr Andrew Montague, Members of the Dementia and Palliative Care Co-design Working Group (representing organisations such as CCLHD, HNECCPHN, HammondCare, ADSSI, Carers NSW), A/Prof Nicolette Hodyl
CONTACT Dr Zoi Triandafilidis
zoi.triandafilidis@health.nsw.gov.au
PARTNERS HammondCare, Central Coast LHD, University of Newcastle, NSW Regional Health Partners
SUMMARY

In November 2022, representatives of the Central Coast Research Institute, HammondCare and the Central Coast Local Health District initiated the idea to take forward a co-design process across key stakeholders focusing on integrated models of care that improve care experiences, outcomes and effectiveness of services delivered with and for people living with dementia at the end-of-life.

This co-design initiative started as a result of ongoing discussions about the need to significantly improve the end-of-life care experience for people living with dementia on the Central Coast, including consideration of the research findings from a 3-year project undertaken by the CCRI and CCLHD that identified the key attributes to such a model.

The purpose of the group is to work collaboratively to establish a value case for an improved model of care for people living with dementia and carers at the end of life to enable funding for a pilot project.

This project also received grant funding from the Hunter Medical Research Institute’s 2023 Healthcare Transformation Research Program.

OUTCOMES

The group undertook 4 facilitated half-day co-design workshops based at the CCRI facility in Gosford. The group developed a value case for an improved model of care for people living with dementia (and carers) at the end of life for testing out during a workshop with an international audience at the 3rd Asia Pacific Conference on integrated Care (APIC3) to be held at the Wesley Centre, Sydney, 13-15 November 2023.