Co-Designing an Integrated Model of Palliative and Dementia Care
completezoi.triandafilidis@health.nsw.gov.au
In November 2022, representatives of the Central Coast Research Institute, HammondCare and the Central Coast Local Health District initiated the idea to take forward a co-design process across key stakeholders focusing on integrated models of care that improve care experiences, outcomes and effectiveness of services delivered with and for people living with dementia at the end-of-life.
This co-design initiative started as a result of ongoing discussions about the need to significantly improve the end-of-life care experience for people living with dementia on the Central Coast, including consideration of the research findings from a 3-year project undertaken by the CCRI and CCLHD that identified the key attributes to such a model.
The purpose of the group is to work collaboratively to establish a value case for an improved model of care for people living with dementia and carers at the end of life to enable funding for a pilot project.
This project also received grant funding from the Hunter Medical Research Institute’s 2023 Healthcare Transformation Research Program.
The group undertook 4 facilitated half-day co-design workshops based at the CCRI facility in Gosford. The group developed a value case for an improved model of care for people living with dementia (and carers) at the end of life for testing out during a workshop with an international audience at the 3rd Asia Pacific Conference on integrated Care (APIC3), held at the Wesley Centre, Sydney, 13-15 November 2023.
An event was held in December 2023 to celebrate the work of the group to date, as well as plan for the future. The next steps for the working group in 2024 are to plan for the education delivery, engage further with primary care, and secure funding to implement and monitor the initiative.
Check out these short clips of some of our group members speaking about the process! Co-Designing a Palliative Care model for dementia patients – YouTube